Update 9/21/08

This afternoon we went to see Gracie and spoke with a couple of her doctors. They said this evening they were going to turn down her nitric oxide as part of the weaning process. She is currently being supplied at 50%. When we went back to say good night to little Gracie though, about 7:30 p.m., the nurse on duty then said that they were not going to turn it down. Something about giving her another night of no-stress. Not sure why the change. We talked to Gracie and told her good night and she seemed unusually responsive. She kept tightening her leg and trying to move. She opened her little mouth and her tongue was moving around. I think she knows we are around now and wants to let us know that she knows. She is responding to Mommy's voice. We are not supposed to stimulate her very much though so we just stayed for a few minutes and then left.