12/11/08

Well I suppose my readers need an update. I am starting to get passive aggressive. We are so close to coming home so I feel the need to start bugging them now. So I posed the question today about WHEN.....and they said it wouldn't be the weekend. When I mentioned Monday or Tuesday they didn't say NO, but that's all I really have right now. I was only a LITTLE upset when they put the feeding tube down her nose yesterday. For some reason, this particular nurse must have forgotten that Grace is nearly 3 months old. Holy cow. I think feeding is not a worry. So I spent all of today just nursing and she got full feeds, so hopefully this will convince those silly nurses that indeed we do NOT need a feeding tube. It was a new nurse to Grace and I guess she wasn't aware at what a great nurser Grace is. She is back to her old self in that respect. I miss our regular nurses - we have all new ones this week. They are too used to preemies. They say they almost never have big babies like Grace. Most of the babies here go home when they reach 5 pounds. So basically the only thing keeping us here is ONE tube of IV nicardipine. Yeah, she's back on the blood pressure meds. Her blood pressures are still a little high, but they think that in time they will improve. Sometimes it takes the kidney a while before it realizes it doesn't have to work so hard. So the doctors just need to get her on some p.o. izradipine that we can go home on. So I am pushing for them to hurry up and get that done because Grace is all done with the fun. I mean Ronald McDonald is so nice, we have had so much attention from everyone here, but enough is enough. Can you tell I am getting impatient? I noticed today that Grace is starting to get rolls of skin now in her abdomen from where the tumor used to be. That is so nice to see. Grace was very peaceful today. She didn't cry really at all and she smiled a lot at me. She kind of laughs or coos now. The nurses wanted her to sleep but she didn't sleep at all today. Again, I think they are forgetting that she is nearly 3 months old and she just doesn't want to sleep anymore in the daytime. She is so bored with this place! Oh and I did get the word today from the doctors that Grace won't be having more chemotherapy. They just want to check her with an MRI in about 3 months and over the next year. Good news, I think!